HYPOPARATHYROIDISME I NORDEN
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We proudly present our new single CD "Slow Walking"!
Our single CD "Slow Walking" is a song about having to live with Hypoparathyroidism.
The income of the sales goes to our voluntary and nonprofit organisation, working to benefit those affected by Hypoparathyroidism.
A huge thank you, to those who made this record a reality:
Lyrics by Astri Marie Hansen (with HPTH). Music by Tore Hansen (her husband). Produced and arranged by Vegar Laurendz Pedersen.
Piano - Hans Petter Tangen. Drums - Christian Nesheim. Vocals - Tore Hansen. Bass and El-guitars - Vegar L. Pedersen. Akk-guitars - Ingvald Alvseike.
Recorded, mixed and mastered by Ingvald Alvseike & Vegar L. Pedersen in Karmøy Lydstudio ANS, Norway. www.karmoylydstudio.no
You may order the single CD in the menu to the left, under: "Order our single CD".
Please click on "les mer" to listen to the music:
Our new leaflet, 2009.
Our new leaflet is accessible in 4 languages; Norwegian, Danish, Swedish and English.
It is designed by Veronica Sande.
We would like to thank the Learning Center at Oslo University Hospitall, Ullevål, Norway, for their help and support. A further thank you to the Norwegian Directorate of Health for their financial support and to all those who helped in the translations.
A special thanks and appreciation to Professor Erik Fink Eriksen, Department of Endocrinology, Oslo University Hospital, Aker, Norway. His contribution, in editing and securing the quality of the leaflet, is irreplaceable.
You may print out the leaflet here (PDF) or use the menu to the left (at the bottom).
Hypoparathyroidism in Finland. Welcome!
Hypoparathyroidism (HPTH) is a rare disorder, which is characterized by the lack of parathyroid hormone (PTH). The prevalence is estimated to be 1/15.000. Normally it has developed as a complication after an operation on the thyroid glands. The disease may also be inherited or connected to other diseases. Having a rare disorder gives the person a feeling of isolation. It may be demanding both for the patient and the doctor to find the best treatment.Nordic HPTH Organisation
is directed by people with HPTH, with the help and advice from interested professionals. We hope to support our members by giving advice and information. We also aim to increase understanding about the condition and fight for a better treatment and care. We wish to increase the contact between members with this rare disorder. Nordic HPTH Organisation is a member of EURORDIS, HPTH Europe and the American Hypoparathyroidism Association Inc.
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Danish patients may now participate in PTH Clinical Trial.
Danish Phase 3 registration study of PTH 1-84 (REPLACE) for the treatment of Hypoparathyroidism.
Danish clinical study in the use of parathyroid hormone (PTH 1-84) for the treatment of Hypoparathyroidism (HPTH) has begun enrollment in Aarhus, Copenhagen and Odense. This is part of a worldwide study sponsored by NPS Pharmaceuticals, Inc.
This is an important milestone in the treatment of hypoparathyroidism worldwide.
If you have Hypoparathyroidism and would like to participate, you will find information about REPLACE by clicking here.
Please contact the nearest Study location or our association for further information.
Members of EURORDIS.
We are members of EURORDIS.
The European Organisation for Rare Diseases.
Eurordis’ mission is to build a strong pan-European community of patient organisations for people living with rare diseases, to be their voice at the European level, and - directly or indirectly - to fight against the impact of rare diseases on their lives.
Eurordis also undertakes activities in the favour of
promoting scientific and clinical rare disease research and developing rare disease treatments and orphan drugs.
