The members of the organisation are mainly patients with the disease or their close relatives. Interested professionals may also be members. The board of our organisation has the authority to decide if the criterions for membership are fulfilled.
Membership is free.
Membership.
You are not alone! Your membership will give you the possibility to make contact with others with the disease.
We do not know how many patients we are. Through your membership you will help us to strengthen our organisation and increase understanding about the condition and fight for a better treatment and care.
You are not alone! Your membership will give you the possibility to make contact with others with the disease.
We do not know how many patients we are. Through your membership you will help us to strengthen our organisation and increase understanding about the condition and fight for a better treatment and care.
